Nemours Speech Pathologists Demonstrate Belly Breathing - or Diaphragmatic Breathing • Diaphragmatic breathing is also called “belly breathing.” It’s a deep breath that tells the nervous system to calm down. • When babies are born, they naturally breathe from the belly. But, as kids get older, they start to breathe more shallowly from the chest. • (Demonstrate belly vs chest breathing) • We are going to learn belly breathing in 3 different positions. • First, let’s begin by lying comfortably down on our backs. Put one hand on your chest and one on your belly. Take a slow deep breath through your nose and feel your belly rise. Breathe out and feel your belly flatten. Try to keep the hand on your chest as still as possible. Repeat for 10 breaths. o Place a small object on your belly instead of your hand. Notice it how it moves up and down. • Next, stand up straight. Put one hand on your chest and one on your belly. Breathe in slowly through your nose and feel your belly rise. Breathe out and feel your belly flatten. Try to keep the hand on your chest as still as possible. Repeat for 10 breaths. • Finally, sit in a comfortable position. Place one hand on your chest and one on your belly. Breathe in slowly through your nose and feel your belly rise. Breathe out and feel your belly flatten. Try to keep the hand on your chest as still as possible. Repeat for 10 breaths. • These are the steps to learn belly breathing. Eventually you will want learn to do belly breathing while exercising. • Practice belly breathing in all 3 positions (lying down, sitting, and standing) twice daily, Complete 10 good belly breaths in each position. o The more you practice, the sooner diaphragmatic breathing will become your “automatic” breathing pattern once again! Visit www.nemours.org to learn more.
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Nemours Speech Therapists Demonstrate Stretches to Release Tension in the Neck and Shoulder Muscles to Help Avoid Vocal Cord Attacks • It is important to properly stretch your neck and shoulder muscles because they connect to your vocal folds. When you stretch, you will reduce your risk for a vocal fold attack. • You will do 10 repetitions of each stretch or hold each for 10 seconds. • Let’s begin with backward shoulder rolls, followed by forward shoulder rolls. Do 10 of each. o We spend much of our day with rounded shoulders, so these stretches are especially important. • Then we will complete 10 shoulder shrugs. Gently shrug your shoulders up and down. o These stretches should never cause pain. If you are experiencing discomfort, decrease your range of motion during the stretch. By range of motion, I mean, don’t move your shoulders up so high. o When you practice these stretches daily, your flexibility should improve. • From there we will bend our right ear toward our right shoulder and hold for 10 seconds. Then we will switch to the left side and hold for 10 seconds. o • Then we will move on to head turns. Keep your head straight and then look to the right and hold for a few seconds and then look to the left. Repeat 10 times. • Next, we will complete head rolls. Drop your chin towards your chest and slowly turn your head to the left and then to the right. Repeat 10 times. • From there we will stretch our arms. Place your left arm across your chest and hook it with your right hand. Hold for 10 seconds. Then switch, right arm across your chest and hook it with your left hand. Hold for 10 seconds. • Then we will finish with hands clasped behind the back. Hold for 10 seconds. o This helps open the chest and improve breathing. • Doing this series of stretches will take about 2 minutes to complete. Try to do them at least twice daily and especially right before you exercise. Visit www.nemours.org to learn more.
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What should you do when your child has a nosebleed? Dr. Julie Wei, Division Chief of Otolaryngology at Nemours Children's Hospital talks about the most effective ways to treat children's nosebleeds.
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Kids with Cystic Fibrosis would like teachers to know that they're just like other kids —they're athletes, artists, musicians and students. But having CF means having special medical needs and they'd like to ask teachers for a little extra help dealing with their condition in the classroom, so they can have a normal school experience, just like everyone else. To see the full length video, visit https://www.youtube.com/watch?v=EASUbdXnHrI And for more information, visit the Cystic Fibrosis Foundation at www.cff.org or Nemours.org/cf
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Take your child on a pediatric surgery video tour with Sheridan on her surgery day. By sharing the top 10 things kids need to know about surgery, this fun, kid-friendly video shows children and teens what to expect step-by-step when they have surgery at Nemours/Alfred I. duPont Hospital for Children in WIlmington, Delaware.
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Dr. Steven Ritz is pediatric cardiologist at Nemours duPont Pediatrics clinics in Voorhees and in Vineland, as well as part of the team in the Nemours Cardiac Center at Nemours/Alfred I. duPont Hospital for Children. When little hearts need help and families need hope, Nemours' expert, pediatric cardiology teams are there. Most children with heart disease are born with a congenital heart defect. So the sooner kids can get diagnosed and treated, the better. The Nemours Cardiac Center is unique - offering families one-stop pediatric cardiology care. Every surgeon, nurse, and anesthesiologist on the Nemours Cardiac Center team is dedicated to caring for children with heart conditions. This is all we do. No matter what kind of heart problem your child has or where you live, our pediatric cardiologists use the latest, most advanced technologies to diagnose and treat children of all ages with all kinds of pediatric heart disease — from preventive cardiology to advanced pediatric surgery for the most complex conditions. We specialize in early detection and repair, so that your child will have the best possible chance for a healthy future.
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NEMOURS CHILDREN’S HEALTH SYSTEM | Watch as Guadalupe’s cochlear implant is turned on at Nemours Children’s Hospital in Orlando. Guadalupe’s sweet smile marks the beginning of a life-changing journey to reach her full potential. Born with profound hearing loss, Guadalupe relied mostly on sign language and hearing aids to communicate. Today’s advanced cochlear implant technology and interventions allow children like Guadalupe to learn to recognize speech and develop language skills, starting as early as 12 months. It’ll take some time, but with the Nemours pediatric cochlear implant team by her side, Guadalupe will have the best chance to play, laugh and learn with friends. CALL FOR APPOINTMENT: (407) 650-7715 LEARN MORE: https://www.nemours.org/service/medical/cochlear-implants-in-children.html?location=nchorlando PEDIATRIC COCHLEAR IMPLANT PROGRAM IN ORLANDO The comprehensive cochlear implant team at Nemours Children’s Hospital in Orlando work together from the first evaluation through surgery, and well beyond hearing sound for the first time. The team includes board-certified, fellowship-trained pediatric otolaryngologists (ear, nose and throat, or ENT doctors) and surgeons, doctorate-level pediatric audiologists, and a master-educated pediatric speech-language pathologist. ABOUT NEMOURS CHILDREN’S HEALTH SYSTEM Nemours Children’s Health System is one of the nation’s largest integrated non-profit pediatric health systems that focuses on prevention and education, medical research, academics and health advocacy to improve the lives of children and families everywhere. Nemours owns and operates two free-standing children’s hospitals and extensive community networks of specialty, urgent and primary care locations, as well as online video doctor care, throughout the Delaware Valley and Florida. LEARN MORE: https://www.nemours.org/welcome.html
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Kids with Cystic Fibrosis are just like other kids. They're athletes, artists, musicians and students — but having CF means they have special medical needs and need a little extra help dealing with their condition in the classroom. This video created by the Cystic Fibrosis team at Nemours Children's Clinic, Jacksonville can help teachers understand what daily life is like for kids and teens with CF, the challenges they face, and shares ways the students and teachers can work together for a better school experience. For more information, please contact The Cystic Fibrosis Foundation at www.cff.org or visit Nemours.org/cf
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Formerly conjoined twin Carter Mirabal, who underwent a 12-hour separation surgery from his brother Conner on May 7, 2015, was discharged from Wolfson Children’s Hospital almost a year to the day on Friday, May 6, 2016. Born at UF Health Jacksonville, Carter and Conner were transferred to Wolfson Children’s Hospital within hours of their birth for emergency surgery by Nemours Children’s Specialty Care, Jacksonville, pediatric surgeons; these surgeons also performed their second and final separation surgeries. Conner went home this past January, while his twin brother Carter received additional medical and surgical care at Wolfson Children’s Hospital. On Saturday, May 7, the family came back to the hospital to celebrate the one year anniversary of the boys' separation with Dr. Dan Robie, one of their pediatric surgeons, as well as nurses and staff from Wolfson Children's hospital. Carter and Conner are now home with their family and doing well.
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Although pediatric sickle cell disease can occur in any child, about one in 400 African-American children and one in 1,000 Hispanic children are born with the disease each year in the United States. Our renowned hematologists, oncologists and researchers are responsible for making the Nemours Center for Cancer and Blood Disorders one of the very best in the country. We work together to treat kids affected by sickle cell anemia and sickle cell disease (a group of inherited blood disorders that affect the red blood cells responsible for carrying oxygen throughout the body). Types of sickle cell disease in children are based on specific inherited genetic defects. We treat all types of childhood sickle cell disease, including: sickle cell trait (marked by inheriting one hemoglobin S gene and one normal hemoglobin A gene which can be passed on; usually causes no symptoms) sickle cell anemia (also called “homozygous sickle cell disease,” the most common and severe form caused by inheriting two hemoglobin S genes from both parents) sickle cell hemoglobin C (a milder form marked by inheriting one hemoglobin S gene and one hemoglobin C gene, which is also defective) sickle cell beta thalassemia (two types — sickle beta zero and sickle beta plus — range from mild to severe, caused by inheriting one hemoglobin S gene and one beta thalassemia gene) If we discover any type of sickle cell disease (like sickle cell anemia), our multidisciplinary (collaborative) team plans the most effective treatment personalized to your child’s needs. In addition to an experienced, compassionate nurse coordinator (who provides your child and family support, education and care coordination), Nemours’ pediatric blood disorder teams include: hematologists (blood disorder specialists) pulmonologists (lung specialists) orthopedists (bone specialists) neurologists (specialists in brain and spinal cord disorders) urologists (specialists in urinary and reproductive organs) pathologists (diagnose diseases by examining body tissues, fluids and organs) radiologists (diagnose diseases using medical imaging) geneticists (perform genetic counseling and testing) behavioral health specialists (psychologists and psychiatrists) pain management specialists (anesthesiologists trained in pain management) registered dietitians (nutrition specialists) hematology nurses (registered nurses specializing in childhood blood disorders) Your care team is here to provide your family with ongoing support and follow-up. We always include you in the entire process, because we truly believe in the healing power of families and that you know your child best. To learn more, visit Nemours.org/SickleCell
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Pediatric Acute Care nurse Seth Neale, RN talks about why he enjoys working at Nemours Children's Hospital in Orlando, FL. Nurses reflect the heart of our Nemours mission every day. That’s why we are committed to recruiting and retaining nurses who share a dedication to helping children grow up healthy. We give nurses the opportunity to do the work they love and pursue their professional goals by offering: collaborative family-centered care, including patient family rounding clinical and academic partnerships interdisciplinary inpatient and outpatient care research and education opportunities great benefits and flexible schedules respectful working environment Visit www.nemours.org to learn more.Visit www.nemours.org to learn moreVisit www.nemours.org to learn more.
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Visit www.nemours.org to learn more. Dr. Eric Sandler is the Division Chief for Nermours Center for Cancer and Blood Disorders at Nemours Children's Specialty Care, Jacksonville, Florida. Dr. Sander is committed to providing compassionate, family-centered care and working toward the best outcomes for children with cancer and blood diseases. His areas of expertise include: Oncology (Cancer Care) Blood and Bone Marrow Transplantation Hematology (Blood Disorders) Bone Tumors Bone Marrow Failure Anemia Brain Tumors Hemolytic Anemia Hemophagocytic Lymphohistiocytosis Leukemias Liver Tumors Lymphoma Neuroblastoma Neurocutaneous Syndrome Neutropenia Retinoblastoma (Eye Tumor) Soft Tissue Sarcomas Thrombocytopenia Sickle Cell Disease For Appointments: (904) 697-3600 Fax: (904) 697-3927
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Taking Care of Your Child's Gastrostomy Tube (G-Tube). Tara Spruill, RN, BSN - Nemours Children's Clinic, Jacksonville discusses gastrostomy tube or g-tube education. A g-tube is a silicone tube that's placed in your child's abdomen through a hole in the stomach made by the doctor. Your child probably has a g-tube because they are unable to eat enough food by mouth to supply a good amount of calories for their body to grow at a normal rate. There are many different types of g-tubes. Our clinic uses buttons. A button is a small tube that lies close to your child's skin on the outside, and has a removable extension tube that is used form feeding, administering medications and venting or burping your child. One of the most common questions that parents have about g-tubes is how to take care of the skin around the g-tube. It's important to keep the skin clean and dry and to look for signs of redness and irritation after each feeding. Your routine should be simple, and the less products you use the better. Take 3 cotton swabs with plain soap and water. Dip the first cotton swab in the soap and water. Start underneath the g-tube all the way around, and work your way out. Dip the second swab in plain water and with the same motion, start underneath the g-tube all the way around and work your way out. The third swab is a dry one. Using the same motion, start underneath the g-tube and work your way out. It's important to turn the g-tube half a turn after each feeding to prevent it from indenting into the skin, and causing redness and irritation. As your child grows, and their weight fluctuates their g-tube may need to be longer. If your child's tube is too snug or too loose give the surgery center a call, and schedule a g-tube change. It's an exciting time when your child's doctor tells you that they no longer need their g-tube because they are able to take enough food by mouth. After the tube is removed the hole should close on its own. We recommend that you use a barrier cream and a bandage for the first 48 hours. If you notice that after 4-6 weeks that the hole has not closed, it may need to be done surgically.
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For more than five years, Gavin Leong was a patient of Nemours/Alfred I duPont Hospital for Children in Wilmington, Delaware, where many physicians, nurses, therapists, technicians and others were involved in his care. Gavin's parents, Kate and Ed Leong, called the hospital their second home and said, fittingly, that they were always made to feel like family. After Gavin's passing, Kate and Ed requested a meeting to express their thanks to ophthalmologist Dr. Sharon Lehman, ENT surgeon Dr. Rob O'Reilly, child life therapist Jen Jankowski, and many others who had cared for Gavin all his life. It is hard to imagine a more touching and heartfelt testament to the duPont Hospital's focus on family centered-care.
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Two-year-old Emma wanted to play with blocks, but a condition called arthrogryposis meant she couldn't move her arms. So researchers at Nemours/Alfred I. duPont Hospital for Children 3D-printed a durable custom exoskeleton with the tiny, lightweight parts she needed. Video courtesy of Stratasys: http://www.stratasys.com
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Nemours Speech Pathologists Show How to Do Rescue Breaths for Vocal Cord Attacks Teaching the “Rescue Breath” • When you are experiencing a vocal fold attack, the vocal folds squeeze together, much like a cramp or a “charley horse.” This makes it difficult to breathe because the airway is being slightly closed off. • When you take a rescue breath, try to focus on the exhale. You may feel like you need to take a deep breath in, but try not to because that can cause stridor and increased tightness. Concentrate on the exhale. • Let’s begin with a long exhale through pursed lips or “kissy face” lips. o Pursed lips are important because they help shape the vocal folds into a relaxed or open position. Then we will take two short sniffs in through the nose. • During a vocal fold attach, you should repeat this type of breathing several times until your breathing improves. • Some kids find it helpful to count the breaths. o Slowly breathe out for a count of 4 and then breathe in through the nose for a count of 2. • You can use this breathing whenever you need it – like when climbing steps, running sprints, or even when completing a 5k! Visit www.nemours.org to learn more.
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Visit www.nemours.org to learn more. Jacksonville, Florida, May 11, 2015 – Carter and Conner, conjoined twin boys born Dec. 12, 2014, in Jacksonville, Fla., underwent a successful separation surgery on May 7, 2015. The 12-hour surgery began at 7:11 am, led by a team of highly skilled pediatric specialists that included Daniel Robie, MD, chief of pediatric general surgery, and Nicholas Poulos, MD, pediatric general surgeon, for Nemours Children’s Specialty Care and Wolfson Children’s Hospital. The boys were separated at 3:34 pm. Conner’s surgery was finished at 6:29 pm and he was transferred from OR 8 to the Pediatric Intensive Care Unit (PICU) at Wolfson Children’s Hospital at 6:52 pm. Carter’s surgery ended at 6:47 pm and he was transferred to the PICU at 7:14 pm to join his brother. The separation involved a 17-member surgical care team (blue for Carter, green for Conner and white for surgical support). From the day after their birth to the morning of their final separation surgery, Carter and Conner received care in Wolfson Children’s Hospital’s Level III Newborn Intensive Care Unit (NICU) under the direction of Josef Cortez, MD, and Ma Ingyinn, MD, neonatologists with the University of Florida (UF) College of Medicine – Jacksonville. During their stay to now, the boys have been cared for by nearly 200 health care professionals that include neonatal and pediatric critical care nurses, pediatric respiratory therapists, rehabilitation therapists, Child Life specialists, pediatric chaplains and other health care disciplines. Before Separation Surgery On Dec. 13, 2014, the twins underwent emergency surgery to repair a potentially life-threatening condition called a ruptured omphalocele, in which their shared small intestine protruded through a weak area of the abdominal wall. Dr. Robie and Dr. Poulos positioned the babies’ shared small intestine back inside their abdominal wall and placed a temporary mesh patch over it to keep the bowel inside. On Jan. 2, 2015, the boys underwent an additional surgery to remove the temporary mesh. Dr. Robie and Dr. Poulos then partially separated the shared small intestine to enable the babies to feed orally. During the procedure, the pediatric surgeons discovered that the boys had two bile ducts that also were fused. Conner and Carter’s livers and bile ducts were left intact for the May 7, 2015, separation surgery. Hope for the Future “We are honored and thank the Mirabal and Brantley family for placing their trust in us to care for their beautiful baby boys,” said Dr. Robie. “During this critical period on the road to recovery that is ahead of Carter and Conner, they have the wonderful support of their family and a skilled care team who are committed to their recovery, development and best possible health.” Carter and Conner’s mother, Michelle, said, “We are so grateful to everyone who has taken care of our babies. We had so much confidence in them and they have been so good to us and to our family. We can’t wait to take Carter and Conner home!” ### About Wolfson Children’s Hospital of Jacksonville Wolfson Children’s Hospital in Jacksonville, Florida, is a part of Baptist Health, Northeast Florida’s most comprehensive health system serving every stage of life. Wolfson Children’s is the only hospital just for kids in Northeast Florida and serves as the region’s pediatric referral center. Staffed 24/7 by pediatric nurses and other healthcare professionals specially trained to work with children, the 213-bed, patient- and family-centered hospital features the latest pediatric medical technology in a welcoming, child-friendly environment. About Nemours Children’s Health System Nemours (NAH-mors) is an internationally recognized children’s health system that owns and operates the Alfred I. duPont Hospital for Children in Wilmington, Delaware and the Nemours Children’s Hospital in Orlando, Florida along with major pediatric specialty clinics in Delaware, Florida, Pennsylvania and New Jersey. Established as The Nemours Foundation through the legacy and philanthropy of Alfred I. du Pont, Nemours offers pediatric clinical care, research, education, advocacy and prevention programs to all families in the communities it serves. For more information, visit www.Nemours.org. About the University of Florida College of Medicine – Jacksonville The University of Florida College of Medicine – Jacksonville is the largest of three UF colleges on the 110-acre UF Health Jacksonville campus. The college’s 15 clinical science departments house more than 380 faculty members. The college offers more than 30 different graduate medical education programs and has more than 300 residents and fellows in training. Last year, the college secured more than $19 million for research projects – the sixth consecutive year funding has increased.
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Marissa Ierna was a senior in high school when she learned she had a rare form of tissue cancer, rhabdomyosarcoma. During her treatment at Nemours Children's Clinic, Jacksonville, which included a year of chemotherapy, she found strength through exercise and a nonstop positive attitude. Marissa's radiant smile inspires all who meet her, including her care team at Nemours. Marissa will be a guest of honor at "An Evening of Promise" on August 23, 2013 to benefit research in pediatric cancer and blood disorders at Nemours Children's Clinic, Jacksonville. Come join us for an evening of elegant music, spectacular cuisine and mingling in the enchanting gardens of The Cummer Museum. Your gift will help find new and better treatments for pediatric cancer — and bring the promise of hope to young people like Marissa. For tickets & additional information, please contact Kelsey Bridges at (904) 697-4126 or email@example.com.
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Dr. Ryan Ilgenfritz is a pediatric orthopedic surgeon and sports medicine specialist at Nemours Children's Hospital, Orlando, Florida. In this video, Dr. Ilgenfritz talks about why he decided to become a pediatric orthopedic surgeon, his special orthopedics interests, including hip dysplasia and the kind of relationships he strives to have with patients and families. If you would like to make an appointment with Dr. Ilgenfritz, please call (407) 650-7715. Visit www.nemours.org to learn more.
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To create the expanded Nemours/Alfred I. duPont Hospital for Children, we talked to parents and listened to children to find out what they would wish for most in a hospital. We asked our caregivers what would help them continue to deliver the very best care. These thoughts and ideas helped inspire the design of duPont Hospital for Children — an environment to promote physical, emotional and spiritual healing of children. Ranked among the best children’s hospitals in the nation by U.S. News & World Report, we were also awarded the elite distinction as a 2012 Leapfrog Group Top Children's Hospital, making us one of the safest children’s hospitals in the country. Throughout all of our specialty areas, we’ve assembled superior expertise among family-centered teams — to help tackle many of the toughest challenges kids can face. We’ve earned the prestigious Magnet® Designation for nursing excellence. Plus, our board-certified physicians are named, year after year, as some of the Best Doctors in America®. And because the last thing you need when your child’s sick is stress, our family-friendly hospital is set amid a beautiful park-like setting of oaks and green lawns. Our valet parking can help make the experience even more convenient for families. We want to ensure that every aspect of your time with us is as comfortable as possible.
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Dr. Nicole Marcantuono, a pediatric specialist in the Division of Rehabilitation Medicine, Department of Pediatrics at Nemours/Alfred I. duPont Hospital for Children, is an expert on concussions in children. In this video, she talks about how much rest might be needed after a concussion. Visit www.nemours.org to learn more.
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Learn how to use an Incentive Spirometer, a device that help you take slow deep breaths and keep the lungs working well.
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A premier destination for pediatric orthopedics, Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., is a recognized leader — nationally and internationally — in the field of pediatric orthopedic medical care, surgery and research. Our pediatric orthopedic program is ranked in the nation’s top five by U.S. News & World Report. And our renowned pediatric orthopedic surgeons are consistently named among the Best Doctors in America®. Visit www.nemours.org/orthopediccenter to learn more.
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This video covers important information that pediatricians need to know when reviewing cystic fibrosis newborn screening results, and the best way to share the results with parents. Newborn screenings for CF have only been done in the last 10 years and the results can be confusing because most states screen for only 40 or 50 of the most cystic fibrosis mutations. Leila, a young girl with cystic fibrosis, and Nemours nurse practitioner, Kathryn Kinyon-Munch explain how the screenings are done and how to interpret and share the results with parents. For more information, visit cff.org.
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NEMOURS CHILDREN’S HEALTH SYSTEM | Learn more about ACL reconstruction surgery in kids from the director of the Nemours Center for Sports Medicine in Delaware. Kids with torn anterior cruciate ligaments (ACL) can and do get back to playing sports after successful ACL surgery. In this video, Dr. Al Atanda, director of the Nemours Center for Sports Medicine at Nemours/Alfred I duPont Hospital for Children in Wilmington, Del., one of the nation’s best children’s hospitals for pediatric orthopedic care (U.S. News and World Report), tells kids and families what to expect during and after ACL surgery. Dr. Atanda explains ACL replacement and the pros and cons of using donor graft and host graft (the child’s own) tissue for the outpatient procedure. He talks about the equipment you’ll go home with after surgery, when physical therapy begins, and what happens before an injured athlete is cleared to return to play. The good news is that young, healthy kids don’t have to be sidelined by an ACL injury. With the right care and hard work, most kids are back at it around nine months after ACL surgery. Dr. Atanda evaluates and treats kids with sports injuries at the Nemours Center for Sports Medicine at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Del., and other locations in the Delaware Valley. Learn more and schedule an appointment today. NEMOURS SPORTS MEDICINE Nemours pediatric orthopedic and sports medicine subspecialists offer expert, multispecialty care for athletes of all ages with trauma or overuse injury to bones, muscles and joints. With special focus on preventing an injury before it happens, we also offer customized conditioning, pre-season screenings and performance and intervention counseling to help kids in Delaware, Philadelphia, New Jersey and Florida be the best athletes they can be. DELAWARE VALLEY: https://www.nemours.org/service/medical/sportsmedcenter.html FOR APPOINTMENTS: (800) 416-4441 FLORIDA CENTRAL FLORIDA APPOINTMENTS: (407) 650-7715 Orlando: https://www.nemours.org/service/medical/pediatric-sports-medicine.html?location=nchorlando Lake Mary: https://www.nemours.org/service/medical/pediatric-sports-medicine.html?location=ncclakemary Melbourne: https://www.nemours.org/service/medical/pediatric-sports-medicine.html?location=nccmelbourne NORTHEAST FLORIDA APPOINTMENTS: (904) 697-3600 Jacksonville, Fla.: https://www.nemours.org/service/medical/pediatric-sports-medicine.html?location=nccjacksonville ABOUT NEMOURS CHILDREN’S HEALTH SYSTEM Nemours Children’s Health System is one of the nation’s largest integrated nonprofit pediatric health systems that focuses on prevention and education, medical research, academics and health advocacy to improve the lives of children and families everywhere. Nemours owns and operates two freestanding children’s hospitals and extensive community networks of specialty, urgent and primary care locations, as well as online video doctor care, throughout the Delaware Valley and Florida. LEARN MORE: https://www.nemours.org/welcome.html
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Dr. Craig Johnson, pediatric interventional radiologist at Nemours Children's Hospital is Florida's only dual-trained pediatric diagnostic and interventional radiologist. Dr. Johnson is is fellowship-trained in pediatric diagnostic radiology and pediatric interventional radiology, He and his team of experts uses the latest image-guidance — typically ultrasound, fluoroscopy or XperCT (Computerized Tomography) scan and 3D guidance — to diagnose and treat diseases and tumors throughout the body. XperCT allows for up to 80% radiation dose reduction of traditional CT, while 3D guidance provides for precision that has helped revolutionize medical imaging. These innovative treatments for conditions such as bone tumors or vascular (blood and lymph vessels) tumors can be dramatically less invasive and more effective than traditional, open surgical procedures or any medicines currently available for specific disorders such as: · Vascular Malformations · Vascular Anomalies · Lymphatic Malformations · Lymphatic Angioma · Cystic Hygroma · Venous Malformation · AVM or Arterial Venous Malformation · Klippel Trenaunay · Osteoid Osteoma To learn more about Interventional Radiology procedures at Nemours Children's Hospital, please call: (407) 567-4238.
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Nemours Children's Hospital (NCH) offers an integrated pediatric pain management program dedicated to treating acute (temporary) and chronic (ongoing) pain in children and teens. The program — led by one of the world's top pain specialists who is board certified in pediatric anesthesiology and pain management — is one of only a handful in the United States that also provides healing for the entire family. At NCH, we focus on overall wellness with therapies that meet your child's physical, mental, and emotional needs in both an outpatient clinic and inpatient hospital setting. Our inpatient day stay program (a hospital stay that may last several hours over several days, but not overnight) provides more intensive care for children who don't respond to traditional outpatient treatment. And because your child's pain can't wait, we're committed to seeing you as quickly as possible. Some of the pain symptoms and conditions we treat in children and teens include: acute pain (pain that's temporary or short-term from, say, surgery or an injury) chronic pain (pain that lasts more than six months) abdominal pain arthritis/joint inflammation back and leg pain cancer pain fibromyalgia (widespread muscle pain) headaches neck, shoulder and arm pain nerve injuries neuropathic pain (complex regional pain syndrome -- also called CRPS or RSD) pain related to mental health disorders (like anxiety or depression) pain related to sports injuries
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This spring, in partnership with the University of Delaware, Nemours hosted Artist-in-Residence Frank Waln. Frank is an award winning Native American Hip Hop Artist from the Rosebud Reservation in South Dakota. He joined Nemours in our Creative Arts Therapy program at Alfred I. duPont Hospital for Children, where he has been able to share his story with our patients and families. One of his goals while here was to work with our patients to create a one of kind musical work that tells their story about being in the hospital. What you see here is the result of that collaboration with Frank and some very special kids.
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Infants as young as five weeks old with the most severe form of spinal muscular atrophy (SMA) – a leading genetic cause of infant mortality – can be treated safely with nusinersen. This investigational treatment slowed progression of the disease, improved survival, and in some cases demonstrated remarkable improvement in muscle function, according to research published online today by The Lancet. “With nusinersen, these infants are not only living longer, but they're living better,” said Richard S. Finkel, MD, lead author of the study and chief of neurology at Nemours Children’s Hospital in Orlando, Fla. “SMA is no longer a death sentence for infants. This treatment is by no means a cure, but it is more than we’ve ever been able to offer these families before.” The multi-site, phase two, open-label trial of patients with infant-onset SMA targeted the SMN2 gene with a tiny fragment of DNA called an anti-sense oligonucleotide (ASO), injected directly into the spinal fluid of 20 participating infants. This ASO gets absorbed into nerve cells of the spinal cord and brain and promotes increased production of a critical protein that is deficient in babies with SMA. Not only was the series of nusinersen treatments delivered safely to these fragile babies, but in the majority of patients it was found to halt progression of the disease and in many cases improve motor function, sometimes enabling children to gain skills not seen in SMA Type 1 – sitting, rolling over, and standing – as well as improving survival without dependence upon the continuous use of a ventilator. An estimated one in 40 adults is a carrier of SMA, and one of every 11,000 babies are born with this genetic disease. SMA is typed by severity and age of onset. Babies born with SMA Type 1, the most severe form, are not expected to live until their second birthday without feeding and breathing support. SMA occurs from a defect in the gene responsible for producing Survival Motor Neuron (SMN), a protein critical for normal cell function. Nusinersen is designed to increase the production of this protein by modifying a closely ¬related gene to compensate for the genetic defect. Asher Camp of Lakeland, Fla., now age 3, was diagnosed with SMA Type 1 when he was six months old and began treatment a month later at Nemours Children’s Hospital through this clinical trial. He and his family have seen remarkable development that they never thought would be possible when they received his diagnosis in 2013. "This is a new day, a new era when rare diseases like SMA might just very well be cured in our lifetime. Miracles are happening. Asher’s life is a miracle. Thanks to unbelievable funding for research, awareness, and patient advocacy, we can imagine a day when parents are no longer sent home on diagnosis day with a death sentence but rather sent home with hope for the future,” said Asher’s mother, Amanda Camp. “What if diagnosis day is a day when parents can still imagine their children crawling, walking, running and playing? Imagine the day Asher leaves his wheelchair behind. Imagine." The study builds on the body of research supporting the effective use of nusinersen, one of the first therapies for SMA, developed by Ionis Pharmaceutical in partnership with Biogen. Biogen has submitted a nusinersen for approval in the U.S. by the Food and Drug Administration and in Europe by the European Medicines Agency. Both the Priority Review and Accelerated Assessment designations can reduce the standard review time. Biogen is also preparing for the potential launch of nusinersen, to be sold as Spinraza, possibly as early as the end of 2016 or the first quarter of 2017. Dr. Finkel and his team are continuing to build on the safety profile of nusinersen through several ongoing clinical trials at Nemours Children’s Hospital. NURTURE is an open-label, ongoing Phase 2 clinical trial in pre-symptomatic infants with SMA who are up to six weeks of age at time of first dose to determine whether treatment before symptoms begin would prevent or delay the onset of SMA symptoms. Additionally, Nemours Children’s Hospital is now participating in the Biogen-sponsored expanded access program, to provide nusinersen treatment for patients with SMA Type 1 until the drug is approved by regulatory authorities and is commercially available. Visit www.nemours.org to learn more.
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Take your child on a pediatric surgery video tour with Sammy on his surgery day. By sharing the top 10 things kids need to know about surgery, this fun, kid-friendly video shows children and teens what to expect step-by-step when they have surgery at Nemours Children's Hospital in Orlando, Florida.
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Visit www.nemours.org to learn more.
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Last month we celebrated the completion of the newly expanded Nemours/Alfred I. duPont Hospital for Children. During our celebration week in September, our featured speaker was Dr. Jennifer Arnold, star of the TLC program The Little Couple. Hear what she had to say about her strong connection to Nemours and bringing her children here to be treated.
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NEMOURS CHILDREN’S HOSPITAL | Take a video tour of our hospital for children like no other in Central Florida. When caring for kids is all you do, it shows in all the details at our Orlando children’s hospital built by families, for families. Along with excellent pediatric-only medical services, the hospital features amenities that make life a little easier while you’re here. Our large, private patient rooms offer ample sunlight and space for two parents to sleep comfortably. Rooms also include private showers and spacious areas for visiting, working, playing and eating. Kids can even “paint” their room any light color they want. And because kids love to play no matter where they are, we offer fun activities and things to do for the whole family. Nemours Children's Hospital in Orlando is also where high-tech and high-touch come together for safe, advanced pediatric care. For example, patient rooms are same-handed and can convert to offer all levels of medical care when needed. This means each room has the same equipment in the same place that expands to provide intensive services if necessary. This results in more effective and efficient care when minutes matter. There’s so much more to see. We hope you enjoy tour, and look forward having you stay with us. FOR INFORMATION: (407) 576-4000 NEMOURS CHILDREN'S HOSPITAL: https://www.nemours.org/locations/nch.html ABOUT NEMOURS CHILDREN’S HEALTH SYSTEM Nemours is one of the nation’s largest integrated, non-profit pediatric health systems that focuses on prevention and education, medical research, academics and health advocacy to improve the lives of children and families everywhere. Nemours owns and operates two free-standing children’s hospitals and extensive community networks of specialty, urgent, primary care locations and online video doctor visits throughout the Delaware Valley and Florida. LEARN MORE: https://www.nemours.org/welcome.html
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Concussions are on the rise in youth sports. This is one athlete’s story of what it takes to fully recover from a concussion. Jack was hit in the temple while playing rugby and immediately began experiencing the symptoms of concussion which include confusion, dizziness and headaches. Baseline testing before the season began and after the injury helped doctors and therapists at the Center for Sports Medicine successfully treat Jack for his concussion. The Center for Sports Medicine at Nemours/Alfred I. duPont Hospital for Children is the region’s largest pediatric sports medicine facility dedicated to the comprehensive medical and surgical care, treatment, physical therapy, nutrition and performance of adolescent and teen athletes. The Nemours Center for Sports Medicine program offers swift diagnosis, customized rehabilitation plans,and scientifically-based methods and techniques to help young athletes prevent future injuries.
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Pediatric Transport nurse Nicole Dougherty, RN talks about why she likes working at Nemours Children's Hospital in Orlando, FL. Nurses reflect the heart of our Nemours mission every day. That’s why we are committed to recruiting and retaining nurses who share a dedication to helping children grow up healthy. We give nurses the opportunity to do the work they love and pursue their professional goals by offering: collaborative family-centered care, including patient family rounding clinical and academic partnerships interdisciplinary inpatient and outpatient care research and education opportunities great benefits and flexible schedules respectful working environment Visit www.nemours.org to learn more.
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The pediatric Gait Analysis Laboratory at the Nemours/Alfred I. duPont Hospital for Children was created in 1993 to provide the medical community with state-of-the art, computer-assisted motion analysis of the complex gait cycle. The pediatric gait analysis lab was one of the first of its kind to diagnose gait problems in children. (Gait is how a person walks.) Our pediatric gait analysis lab allows us to get detailed information about the: movement of various joints how the muscles contract pressure on the limbs the amount of energy required to make changes in a child’s gait The Cerebral Palsy Center at Nemours/Alfred I. duPont Hospital for Children is one of a very few in the Mid-Atlantic region dedicated solely to caring for children with cerebral palsy, treating more than 3,000 children every year. Because children with cerebral palsy and other complex conditions often need to see many specialists, our family-friendly program provides access to doctors in many fields, working together as a team right here at the hospital. And we can usually schedule multiple appointments all in one day for your child to see orthopedic and other specialists. Please call (302) 651-5913 for an appointment. Visit www.nemours.org to learn more.
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When you shop for groceries for your family, the Nutrition Facts label is your tool for understanding what's healthy and what's not. Nearly every food product has a Nutrition Facts label on it — but understanding what all those numbers and percentages mean can be challenging. In this video, Nemours dietitian, Mandy Layman, takes you through the label step by step, starting with the serving size, and makes it easy to see how to make healthier choices for your kids - and your family.
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The Bender family traveled from Tallahassee to the Nemours Children's Clinic, Jacksonville so that their son Nick, who is profoundly deaf in his right ear, could have cochlear implant surgery. A few weeks after the procedure, they came back again for activation. Nick's mom, Michelle says, "Today is the day we've been waiting for. He had his cochlear implant turned on and it's activated and he's hearing -- and it's just very exciting." She goes on to point out, "It's interesting.The audiologist goes through several sounds and pitches to make sure he's hearing at the different levels he needs to, and to make sure all the electrodes in the implant are working." Michelle also says, "We've become part of a team. They treat us like family. We feel so connected. He loves to come here. To him it's not a doctor's appointment, itt's time to play. There are so many fun games, you don't even know you're working toward a goal. It's such comprehensive care. He's able to see his audiologist, his ENT specialist and speech therapist in one place. They're all friendly and warm and all work together, side by side. Because he's able to have the cochlear implant procedure, we know that he can do anything. He'll be able to hear, to speak more clearly and communicate with others and that's we hoped for."
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Dr. Joel Temple, MD is a pediatric cardiologist and electrophysiologist at Nemours Cardiac Center at Nemours/Alfred I. duPont Hospital for Children. He is a heart rhythm specialist and takes care of children whose heartbeats are too fast or too slow, as well as children who have pacemakers. When little hearts need help and families need hope, Nemours' expert, pediatric cardiology teams are there. Most children with heart disease are born with a congenital heart defect. So the sooner kids can get diagnosed and treated, the better. The Nemours Cardiac Center is unique - offering families one-stop pediatric cardiology care. Every surgeon, nurse, and anesthesiologist on the Nemours Cardiac Center team is dedicated to caring for children with heart conditions. This is all we do. No matter what kind of heart problem your child has or where you live, our pediatric cardiologists use the latest, most advanced technologies to diagnose and treat children of all ages with all kinds of pediatric heart disease — from preventive cardiology to advanced pediatric surgery for the most complex conditions. We specialize in early detection and repair, so that your child will have the best possible chance for a healthy future.
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The Izzi family of Downingtown Pa., more than doubled in size on Oct. 1, 2013 when triplets Maya, Eva and Jenna were born, several weeks early, at Lankenau Hospital, to first-time parents Jennifer and Michael. All three babies were healthy, weighing over 3 lbs at birth. They just needed some time to grow in the Lankenau NICU. However, about a week later, Maya was transferred to Nemours/Alfred I. duPont Hospital for Children when she developed necrotizing enterocolitis, a serious condition affecting preemies. Maya underwent successful intestinal surgery and would require several weeks' recovery time in the NICU at duPont Hospital for Children. As Jennifer and Michael were running back and forth between the Lankenau and duPont Hospital for Children, their doctors, nurses and social workers recognized the situation as exhausting for them. The staff interceded with the couple's insurance company and were able to arrange transfer of the other two babies to the NICU at duPont Hospital for Children so everyone could be together. To support comfort and bonding -- multiples are sometimes placed together under medical supervision.To protect the safety of children, Nemours does not practice co-bedding and each infant sleeps in his or her own bed.
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Neonatal Intensive Care Unit - NICU - nurse Waleska Bermudez, RN talks about why she enjoys working at Nemours Children's Hospital. Nurses reflect the heart of our Nemours mission every day. That’s why we are committed to recruiting and retaining nurses who share a dedication to helping children grow up healthy. We give nurses the opportunity to do the work they love and pursue their professional goals by offering: collaborative family-centered care, including patient family rounding clinical and academic partnerships interdisciplinary inpatient and outpatient care research and education opportunities great benefits and flexible schedules respectful working environment Visit www.nemours.org to learn more.Visit www.nemours.org to learn moreVisit www.nemours.org to learn more.
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Nemours President and CEO, Dr. David Bailey, talks about the history of Nemours beginning with a transformational gift from philanthropist, Alfred I. duPont. Back in 1940, when the Alfred I. duPont Institute was an orthopedic hospital, children were patients in the hospital for days, weeks, or even months at a time. We had to attend not only to their medical needs, but to their educational needs and their needs to be children. We had to create an environment where children could be children. That became woven into our DNA, that idea of getting it right for the family and creating an environment where family feels safe, secure and has peace of mind. Today, Nemours supports a number of renowned children's health facilities, including the Alfred I. duPont Hospital for Children in Wilmington, Delaware; Nemours Children's Clinic with specialty practice locations in the Delaware Valley and North and Central Florida; and primary care offices in Delaware and Pennsylvania. Nemours is currently developing a new children's health campus in Orlando, Florida, including the Nemours Children's Hospital. To learn more, please visit Nemours.org
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Known by patients and families as "Dr. Naga", Ramamoorthy Nagasubramanian, MD is Division Chief of the Nemours Center for Cancer and Blood Disorders at Nemours Children's Hospital in Orlando, Florida. Dr. Naga is dedicated to giving patients the best treatment possible, to researching ways to improve outcomes for children with cancer and blood diseases, and to being an advocate for patients and families. His areas of expertise include: Bone Tumors Hematology (Blood Disorders) Leukemias Lymphoma Oncology (Cancer Care) Sickle Cell Disease Brain Tumors Hemophilia Soft Tissue Sarcomas Anemia Bone Marrow Failure Hemolytic Anemia Hemophagocytic Lymphohistiocytosis Liver Tumors Neuroblastoma Neurocutaneous Syndrome Neutropenia Retinoblastoma (Eye Tumor) Thrombocytopenia Thrombocytosis For appointments, please call : (407) 650-7715
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NEMOURS HEALTH & PREVENTION SERVICES | Find tips to reduce harmful lead exposure from paint, soil and dust. Lead exposure can cause a decline in IQ, behavior and learning problems, increased blood pressure, kidney problems and even death. It’s important to understand how lead can harm your family and to reduce the exposure to lead at home. Nemours offers simple, inexpensive tips to keep your family healthy, including washing hands and cleaning regularly. PRESENTED BY NEMOURS HEALTH & PREVENTION SERVICES Nemours Health & Prevention Services helps children and families make healthy lifestyle choices by working with partner organizations to influence policy, as well as serving as a resource for parents. This KEEPING A HEALTHY HOME series is funded in part by a grant (1C1MS331017) from the Department of Health & Human Services, Center for Medicare & Medicaid Services. LEARN MORE ABOUT CLEANERS MADE FOR LEAD & CERTIFIED LEAD REMOVAL CONTRACTORS: http://dhss.delaware.gov/DPH/hsp/healthyhomes.html SEE OTHER VIDEOS FROM THIS SERIES 7 Principles of a Healthy Home: https://youtu.be/_utETAoJLJo Controlling Asthma Triggers at Home: https://youtu.be/yauZ-B8uGPk Eliminating Health Hazards at Home: https://youtu.be/pz4OXEvKeoY Keeping Mold Out of Your Home: https://youtu.be/ROSHRDX76os Getting Rid of Pests at Home: https://youtu.be/BUdhwtEusZ4 Cleaning Your Home Safely: https://youtu.be/sWenrViFosc ABOUT NEMOURS CHILDREN’S HEALTH SYSTEM Nemours Children’s Health System is one of the nation’s largest integrated non-profit pediatric health systems that focuses on prevention and education, medical research, academics and health advocacy to improve the lives of children and families everywhere. Nemours owns and operates two free-standing children’s hospitals and extensive community networks of specialty, urgent and primary care locations, as well as online video doctor care, throughout the Delaware Valley and Florida. LEARN MORE: https://www.nemours.org/welcome.html
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NEMOURS CHILDREN’S HOSPITAL | Meet Dr. Jennifer Nelson, a children’s cardiothoracic surgeon at Nemours Children’s Hospital in Orlando. Dr. Nelson loves working at Nemours Children’s Hospital because of the people and the culture. Her team hails from hospitals from across the country, bringing specialized cardiovascular expertise to families in Central Florida. This means top-notch heart care is offered in a new, state-of-the-art children’s hospital, without travelling out of the area. Dr. Nelson is part of the Nemours Cardiac Center in Florida. She sees patients at Nemours Children’s Hospital in Orlando’s Lake Nona area. Learn more about Dr. Nelson and make an appointment today. VIEW DR. NELSON’S PROFILE: http://findaprovider.nemours.org/details/1516 FOR APPOINTMENTS: (407) 650-7715 NEMOURS CHILDREN'S HOSPITAL: https://www.nemours.org/locations/nch.html NEMOURS CARDIAC CENTER IN FLORIDA The Nemours Cardiac Center is an integrated network that extends advanced heart care to kids where they live. With locations across the state, the pediatric Cardiac Center expands Nemours cardiology expertise in Florida that began in Pensacola in 1997. Today, children and families in Florida have access to comprehensive Nemours services, such as fetal heart diagnostics, heart surgery, preventive care and ongoing condition management, closer to home—where healing happens. LEARN MORE: https://www.nemours.org/service/medical/florida-pediatric-cardiac-center.html ABOUT NEMOURS CHILDREN’S HEALTH SYSTEM Nemours is one of the nation’s largest integrated, nonprofit pediatric health systems that focuses on prevention and education, medical research, academics and health advocacy to improve the lives of children and families everywhere. Nemours owns and operates two freestanding children’s hospitals and extensive community networks of specialty, urgent, primary care locations and online video doctor visits throughout the Delaware Valley and Florida. LEARN MORE: https://www.nemours.org/welcome.html
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To learn more, visit Nemours.org/CardiacCenter The Nemours Cardiac Center is unique - offering families one-stop pediatric cardiology care. In this video tour of Nemours Cardiac Center at duPont Hospital for Children, you'll visit our Cardiac Outpatient Center, Cardiac Cath Lab, Cardiac Only Surgical Suites, Cardiac Intensive Care Unit and 2B our inpatient Cardiac Care floor. No matter what kind of heart problem your child has or where you live, our pediatric cardiologists use the latest, most advanced technologies to diagnose and treat children of all ages with all kinds of pediatric heart disease — from preventive cardiology to advanced pediatric surgery for the most complex conditions. We specialize in early detection and repair, so that your child will have the best possible chance for a healthy future.
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Kaley, a young patient at Nemours Children's Hospital in Orlando, has been receiving chemotherapy to fight childhood leukemia. A special condition affecting her spinal cord made it difficult to get the medicine where it needed to go. Dr. Craig Johnson, one of only 2 pediatric interventional radiologists in Florida, was able to use the latest 3-D imaging technology to help deliver Kaley's critical medicine with pinpoint accuracy. Over the course of her treatments, Kaley and Dr. Johnson have developed a special friendship -- and Dr. Johnson will be Kaley's escort for the Runway to Hope gala on May 10. Runway to Hope's mission is to provide direct support and aid to Central Florida children and their families impacted by pediatric cancer.
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Figuring out what a young adult will do after high school is challenging in general, but for young adults with special health care needs the challenges may be different. This video offers vocational guidance to make sure young adults get the most out of high school and are aware of their options, including post-secondary education, job training programs, jobs and day programs. Vocational Rehabilitation services, Adult Disability Resource Centers and Family to Family Health Information Centers are discussed as resources.
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Pediatric interventional radiology — also known as image-guided therapy — involves using medical imaging techniques to guide procedures to diagnose and treat vascular anomalies (problems with blood and lymph vessels) and developmental structural problems, and destroy tumors. Dr Craig M Johnson is the Director of the Division of Interventional Radiology at the Nemours Children's Hospital, and one of only two Pediatric Interventional Radiologists in Florida, the other being Dr. Weber, his partner at Nemours Children's Hospital. Dr. Johnson has extensive expertise in using interventional radiology to treat: Lymphatic malformations Venous malformations Vascular malformations and tumors Musculoskeletal conditions Dr. Johnson is passionate about innovation, particularly within pediatric interventional radiology – which provides new and better therapies for kids. He is working to develop new minimally invasive therapies with multi-disciplinary teams using Image-guided procedures and therapies. He is also also passionate about ensuring that the disadvantaged pediatric population has the opportunity to receive the best possible healthcare.
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